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i survived c diff just

 
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izzy
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Joined: 03 Sep 2006
Posts: 4
Location: ESSEX

PostPosted: Sun Sep 03, 2006 8:39 pm    Post subject: i survived c diff just Reply with quote

i caught c diff in hospital when i was being treated for encephalitis.No one there realised at the time how nasty it was to be.i was just told i had a bit of a bug probably caused by the huge amount of antibiotics i had recieved.
i had been sent home from a&e with a diagnosis of migraine 48 hrs earlier and on rearrival my husband was told i had less than 5 hrs to live if they did not treat my infection aggressively.
we accepted the c diff as a minor problem as i was very confused and had right sided hemi paresis.
it however took me 10 weeks to test clear from it and it nearly killed me.i had collitis and lost 2 stones in weight.i had every antibiotic available firstly through a drip then orally as a desperate measure.
i was lucky in that the ward sister soon realised that this was not the usual c diff and asked for specialist help.i was treated by a microbiologist from u.c.h.the treatment did however ruin my hearing.
it was a horrible painfull experience and i am too scared to tell anyone that i live on immodium and buscopan now.
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Stuart264
I just about live here


Joined: 12 Apr 2006
Posts: 1385
Location: Worthing, West Sussex

PostPosted: Mon Sep 04, 2006 6:17 pm    Post subject: Reply with quote

Let me first say "your not alone".......god I sound like a shrink........I will be saying "lay down on the couch" next [shudder]

By the sounds of it you had it bad Toilet, and I know what living with the after effects is like, because of C-Diff I too live on Buscopan and Colpermin and strict gluten free diet because of the damage.

Things do improve. I am 12 months down the line since my original infection and apart from one relapse I consider myself on the mend, plenty of good advice and good people on here and if we all stand together then things will change.

Stuart.
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izzy
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Joined: 03 Sep 2006
Posts: 4
Location: ESSEX

PostPosted: Tue Sep 05, 2006 8:42 pm    Post subject: Reply with quote

thanks for the reply, i was too put on a everything free diet in hospital which really helped.i was also advised to take a probiotic tablet which was less fiddly than the yoghurt style drinks now available.
sadly since i got home the diet slipped as i was unable to prepare my own food and my then carer simply couldnt grasp the diet thing.
i am a bit cautious as i am on antibiotics 500mg amoxil 3x a day right now , but my already compromised balance means that i need to sort out the ear infection i have at the moment(before i have a fall that means i have to go into hospital again)
does anyone know if its possible to be fully recovered from this bug?
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Stuart264
I just about live here


Joined: 12 Apr 2006
Posts: 1385
Location: Worthing, West Sussex

PostPosted: Tue Sep 05, 2006 11:57 pm    Post subject: Reply with quote

I am pretty much fully recovered now. The doctors gave me the extent of thte damage earlier today. I am now totally Gluten intollerant and I wasnt before and put down as "Treat as a Celiac" and in addition I have trapped nerves in my abdominal wall which are causing the pain but fixable.

So things do get better, the pro-biotics are pretty useless while your taking antibiotics and I agree the tablets are much much better than those sweety yoghurt drinks

As for the "diet thing" I suggest Rice.......its soluble fibre and in my case switiching to a mainly asian diet was my saviour, it improved my symptoms and put the doctors on the right track to confirming my gluten intollerance thanks to C-Diff
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Abigail06
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Joined: 20 Jul 2006
Posts: 22

PostPosted: Wed Sep 06, 2006 3:18 am    Post subject: Reply with quote

Congrats Stuart! August 30th of 2005 was the last Flagyl pill i took for C Diff. So it has been a year for me too!! At times it has felt like it's returned but things look up by the next day. I would be weary about the Amox 3 times a day. Make sure Izzy you take all kinds of probiotics that you can and follow it for couple of weeks after amox. The sound of Antibiotics is good enough to give me a heart attack. I got a new job at a clinic (checking patients in) never have done this job before, but now i have to be really cautious. Wish me luck, as i too wish you all the best.
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izzy
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Joined: 03 Sep 2006
Posts: 4
Location: ESSEX

PostPosted: Wed Sep 06, 2006 8:01 pm    Post subject: Reply with quote

how do you feel about the coeliac diagnosis?i am sure i will try it soon as i can now prepare my own food.
i have heard that there is a book available from the coeliac society listing suitable foods,but it does make eating out tricky i think.
i have found that i cannot eat fatty food without being ill and find that diet micro meals are good.not sure if its the low fat or small portion part that helps.
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MaryT
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Joined: 09 Sep 2006
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PostPosted: Sat Sep 09, 2006 9:29 pm    Post subject: Reply with quote

I am from the US. For a year I have been treated for my second round of recurring cdiff. My first bout lasted a year and a half...this second one I've been treated for a year. In the middle of the first one, I was diagnosed with celiac disease. It is a challenge eating gluten free but there are a lot of options out there if you search for them. Here in the US there are more and more restuarants with separate gluten free menus....Outback Steakhouse being one of them. The damage from eating gluten if you are a celiac is to the intenstinal villi....sort of like fibers responsible for absorbing the vitamins and nutrients from your food. They become lazy so you malabsorb. You remove gluten, they heal and you absorb again. They couldn't tell me if i became susceptible to cdiff because I was a celiac, or I became a celiac from the cdiff. There is a probiotic called reuteri which is really helpful (to me if was anyway) because it strengthens the villi.
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Stuart264
I just about live here


Joined: 12 Apr 2006
Posts: 1385
Location: Worthing, West Sussex

PostPosted: Sun Sep 10, 2006 11:04 am    Post subject: Reply with quote

Its not so bad, I have the book now from Coeliac UK which came promptly, though I am getting very very careful.

Just be very very very careful eating in steakhouses, there is an article online about celiacs ordering steak as the "safe option" in restauarants only to find its been dusted with flour prior to cooking.

Stuart.
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