weight gain with c. diff.

Medical Help And Advice Related To Clostridium Difficile

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weight gain with c. diff.

Postby LYNWAY » Wed Feb 06, 2008 7:05 pm

I'm back, my daughter is on her second treatment for c. diff. We're waiting for the results (should hear tomorrow, I hope).

I'm still very confused. How can she be gaining weight (10 lbs or more) while having C. Diff? It doesn't make sense!

She's worried about eating because it hurts her stomach, she's not excercising hardly at all because as soon as she moved around she would have to run to the washroom.

This doesn't make sense at all!!

Any help or advice would be greatly appreciated.
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Postby Annie » Wed Feb 06, 2008 7:55 pm

Can't make sense of that myself I'm afraid, what do the docs say?
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Postby chrismc » Wed Feb 06, 2008 9:02 pm

It is clear you are worried, would you mind giving us a bit more information, we may be able to help.
Is your daughter eating?
Is she drinking?
How often is she urinating? (going for a wee).
Has the weight gain caused any of her body to look swollen?

Sorry for all the questions, if you can answer these questions and tell us anything else that is worrying you, through your own instincts, we may then be able to help you.
The very first requirement in a hospital is that it should do the sick no harm - Florence Nightingale
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questions

Postby LYNWAY » Thu Feb 07, 2008 11:35 am

Sorry,
My daughter is 18 yrs old. Mentally handicapped, deaf, epileptic. She has not been hospitalized since 2003 and the last time she had an antibiotic was 2005. She has been around a person who's was hospitalized (me for cancer) but that was in 2006 and I never got c. Diff.
She started her 'runs' end of August after having spent 10 days at a specialised sleep away camp in July. She would complain of stomach aches but not severe and she started soiling herself on her way to school. The drive can sometimes take 1 hour with traffic and the driver cannot pull over on the highway.
We had been to see the doctor by end of September and he thought that she could be lactose intolerant. We did all the testing for it and because the results were not completely conclusive the lab said that it was strongly possible.
We started giving her lactaid when we gave her something with lactose, cut out all major milk products. That seemed to help for about a week (probably just taking her off milks gave her some temporary relief). Then it all started again and her school said that it must not be that and that Tina, my daughter, could not return to school until the problem was resolved.
Back to the doctor who finally sent her for more tests which included stool samples. Those came back positive for C.Dif. 5 days before Christmas. We started the meds. By January 7th we sent her to school. It had been about 7 days after the end of her course of meds and we thought she was ok.
She came home that day, again having soiled herself (which by the way upsets her to no end). So it was back to the doctor. He prescribed the next course of treatment this time for 14 days. After the treatment we did all the stool samples again. Results are due in today.
As for her daily life. She was already a little over weight but now she seems to have ballooned. She doesn't eat much because she's afraid it's going to hurt her stomach but she is having three regular meals a day. She does drink alot and it seems like she goes to the washroom alot but I'm not there all day to take account of volume. She also doesn't move around much because everytime she's tried to excersize she would have the runs. We live in Quebec, Canada and with the winter (lot's of snow and cold) she doesn't go outdoors much. Someone did suggest that maybe she is retaining water and that will be one of the questions I ask my doctor today, but the weight gain has me very concerned.
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Postby chrismc » Thu Feb 07, 2008 8:18 pm

Hi,
You don't need to appolige, I was just trying to get some more details to see if we could help in any way, being a Mother myself I understand how anxious you must be feeling, as we are not medics we cannot give you medical advice or a diagnosis, that is up to your Doctor, what I would suggest is to ask your Doctor for a hospital refferal to a see a specialist , I don't know how the system works in Canada, here, a G.P. (General Practictioner) can refer a patient to a particular specialist at the hospital, as Roy advised in one of your earlier posts.
I hope you have received some answer's from the Doctor today that will ease your worry and help your daughter to recover from this horrendous infection.
Are you aware the US have a C.diff support site,
http://www.cdiffsupport.com/
You are most welcome here, just an idea, they may have more knowledge regarding how the medical system works.
I actually found the US site before I was directed here by Bobbie, to whom I will be forever grateful.
Please let us know how the Doctor's appointment went today.
Keep Strong
Christine X
The very first requirement in a hospital is that it should do the sick no harm - Florence Nightingale
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Results are in: NEGATIVE

Postby LYNWAY » Fri Feb 08, 2008 3:30 pm

Yea!

The results came in from the 3 samples. All negative. So now she can go back to school next week and we can start on a regime for boosting her immune system to try and avoid another outbreak!

Thank you all for your support, I've registered at the US site since it is closer to home, but I must thank you all for your patience and words of confort.

Lynda
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